The Congenital Heart Walk shows the nation how a team of inspired individuals can join together to make a difference. Funds raised will support the missions of both national nonprofit organizations who are uniting to fight CHD! Since 2010, CHW has raised more than $8 million in total.
Why you walk: As we became more involved and met more people in the community, we learned about the walks. We feel the walks are a great way to meet other CHD families who share our common bond. More importantly, the walks help raise funds and support for CHD research and treatments. We are so thankful for all those who raised funds prior to Luca being born as those funds went to research that we believe saved our son's life. It's now our turn to give back and for our son to be involved and have gratitude for his life saving procedure.
CHD connection: In 2010 at Vanderbilt Children's Hospital, the families of Blake & Tristan, Jude, and Ayden were forever joined by their journeys with hypoplastic left heart syndrome (HLHS). These boys would fight for their lives over the course of three major heart surgeries, and, in one case, a heart transplant. One son, Tristan, was embraced in heaven. Even with the heartache and struggle, these three families have experienced so much joy and hope in the lives of their children.
Why you walk: Congenital heart disease is the most common birth defect and the leading cause of birth-defect-related deaths worldwide. However, unless one has family or friends who have a child with a heart defect, one doesn't hear much about CHDs. We hope the Lionhearts' participation in the Congenital Heart Walk will increase awareness, which is necessary to provides funds for medical advancement and family support.